That day, I'll be one of the superheroes for the CHAMP1 FRANCE association, thanks to a charity fundraiser. Association Champ1 France was founded in 2019 by two families affected by this ultra-rare disease (fewer than 200 patients worldwide).
The association's four key objectives for those affected by this disease are:

-Representation and visibility
-Promote inclusion in society
-Inform and raise awareness about the disease
-Support research to improve overall care for the patients
 
Please visit the association's website and Facebook page to learn more:
Association website: https://www.champ1.fr/
Facebook page: https://lnkd.in/ezbD_Cdy

Let's use this opportunity to highlight the struggles of patients and their families!
You can contribute to the fundraiser by following the link below.

THANK YOU FOR YOUR SUPPORT!

Aysegul